Krabbe UK is a charity registered in the UK, supporting families affected by Krabbe Leukodystrophy. We also champion research and raise awareness of the disease. 

Contact Us for more information

Support

Providing practical support to families and children affected by Krabbe leukodystrophy..

Research

Promoting and funding research into Krabbe leukodystrophy.

Awareness

Raising awareness with medical teams and research institutes for Krabbe leukodystrophy.

Events Calendar

  • 26th February 2019 - "Krabbe Think Tank"

    Co-sponsored with the Orphan Disease Centre (part of the University of Pennsylvania, School of Medicine), Krabbe Uk are cohosting a "Krabbe Think Tank" in London to bring together medical experts from across the rare disease community in Europe. The aim is to share advances in techniques to identify and treat Krabbe Disease

  • 28th February 2019 - Rare Disease Day

    Rare disease day is 28th February 2019 this year. Follow this link for more details.

  • February 2019 - Sparks/GOSH Research Project

    During February we hope to be able to announce a funding collaboration with Sparks/GOSH on a UK based Krabbe research project following the GOSH research committee recommendations in January.

  • 8th/9th June 2019 - York - Family Weekend

    The 2019 Family Weekend will be held in the beautiful city of York across the weekend of 8th and 9th June.

  • 29th September 2019 - Jeans for Genes Day

    This years' annual Jeans for Genes day will be held on Friday 29th September 2019. 

    Fund rasing packs can be obtained by registering here. If you specify Krabbe UK as your chosen charity, 50% of the proceeds are donated to us and 50% to Genetic Disorders UK.

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